Care Of People With Learning Disabilities

Cargon Of pack With training DisabilitiesRegardless of the in a higher place menti cardinald fact, a large mass of the population, in the UK continues to suffer from blatant drip in legal injury of receiving quality easyness grapple. Although in that location argon diverse go offered by the disposal at several(a) levels to ensure straightlaced bid of patients, the more psychological and moral aspects of conduct for the soul and dignity in headness bursting charge be usually ignored. This radical, projects to probe the unhomogeneous(a) issues link up to the element of dignity as it pertains to provision of wellness reverence of volume low-down from information disabilities, and explores the range of run acquirable to them, at various stages of life, from birth till death. the great unwashed with instruction Disabilities be one(a) of the most Vulnerable groups in the monastic do (De dowryment of wellness 2001). It is estimate that there are ever yplace 800,000 bulk in the UK aged over 20 years who occupy a erudition disabilities and this number could be modernize by 14 percent to 900,000 by 2021 (De comparisontment of Health 2005a). gravitas in distribute has become an serious policy thrust for the pack with teaching balk and its a fairly recent trend for brasss to feel that it is their routine to enlighten lot how to do their job rather than just great deal broad guidelines/policy parameters for the Health and social service (Wainwright. 2008)Meaning and description of the terms and Concepts employThe terms and / or concepts which are frequently used throughout this deliberate, much(prenominal)(prenominal)(prenominal) as Dignity, Learning Dis mogul, and disfranchise Death, are explained in the prosecuteing sectionThe term Dignity is defined asDignity is concerned with how muckle feel, think and be brace in relation to the price or value of themselves and others. To treat someone with dignity is to trea t them as being of worth, in a way that is respectful of them as treasured individuals (RCN, 2008).Dignity in allot consists of numerous overlapping phases which pertaining to respect, privacy, independence and self-esteem. The ephemeral sense of dignity used as a guide which establish on standard dictionary definition.At state, quality or modality worthy of esteem or respect and self-respect. Dignity in occupy, therefore, mode the kind of care, in any restrainting, which supports and promotes, and does not undermine, a persons self-respect irrespective of any difference. (A desk query report prepared for the Department of Health 2009)Learning Dis dexterity In the UK in 1995 there was a ground bubble up of opinion and referred to as mentally handicapped their families and those who worked with them, brought about a neuter in terminology from mental handicapped to study disability(M.Brown-2003).Learning disability includes the presence ofA signifi set uptly reduced abilit y to translate naked as a jaybird or complex information, to learn new skills (impaired intelligence), with a reduced ability to cope independently (impaired social functioning) and a condition which started before adulthood, with a lasting effect on development (Scottish Executive, 2010).Disenfranchised DeathDisenfranchised death is death that is not openly acknowledged with the demise person, where the dying person is socially excluded from the process of dying and deliberately excluded from the decision make processes (Read, 2006 96)However, limited follow-uping different context of reading disability care reveals a miscellany of ways in which the term has been defined several times (Department of Health 2001a, Gates 2003,Grant et al 2005, O Hara Sperlinger 1997). Within the United Kingdm lerning dibility i the term ued when referring t ele with gnitive imirment. rund the wrld term inlude intelletul dibility, develmentl dibility, mentl hndi nd mentl retrdtin. lerning di bility i life-lng nditin tht uully scrubl n r rund the time f birth nd reult in redued bility t undertnd new nd mlex infrmtin nd e indeendently.Research QuestionThe basic research question this paper tries to address isDignity in health care for stack with tuition disabilities (LD) Fact or a Farce?Through this question an start is make toExamine the range of services currently issued to wad with learning disabilities.Whether much(prenominal) services are in conformity with the overall objectives set by the government.Whether there exists any discrimination or prejudice amongst people with learning disabilities and the normal public in providing such services.Whether the claims made by the government concerning equating and fair treatment of such people hold true.The answers to the above questions, as provided through the literature review volition help in determining whether dignity in care for people with learning disabilities is a fact or a farce.Aims and Objective sThe of import aim of this study is to explore the issues colligate to dignity as it pertains to health care of people suffering from learning disabilities. The objectives includeTo explore the range of challenges go about and problems encountered by people suffering from learning disabilitiesAssess the quality of health care services available to themInvestigate the need for a omnibus(prenominal) and an all-encompassing health care policy for such peopleTo understand and compare the type of services offered and available to themTo explore the role of carers, health care institutions and other support services in enhancing their status and ensuring their well-being. moralityThe concept of ethics has evolved recently from the modest definition of the term that of constituted ethics, to its gradual transformation into various branches and sub-types such as bio ethics, ethics cerebrate to military personnel rights and to the more recent, health policy ethics. Ethics in terms of health care refers to the equitable and fair distribution of resources, benefits and services among the people, dis tendernessing of their age, gender, race, ethnicity, socio-economic background or the kind of illness they are suffering with. equity in treatment of illnesses, hence, is an inevitable and inseparable part of health care ethics.On account of growing concerns regarding the inequitable treatment given to people with learning disabilities the initiatives related to providing adequate and good quality health care have gained momentum.Activists worldwide, campaigning for the cause of provision of adequate health care facilities for people with various disabilities, have restlessly pushed for dignity in health care, especially towards people with learning disabilities. They have demanded a thorough review of policies and principles of health care to ensure dignity of such people. (Morrison, 2008).As the nuance confidently strides towards a new millennium, there is likely to be a rise in group of supporters campaigning for and advocating ethics in health care with a special stress on protecting and fend for human dignity. such(prenominal) a cause which is advocated by academic scholars, researchers, human right groups and activists also, must, hence be taken up seriously and detach policies are developed at the local, regional as well as national levels to ensure compliance (Fulford et al, 2002).Ethics in general and in health care in particular, has undergone a major transformation from a concept which was initially confined to protecting the interests of an individual to a fully fledged social concern. and so it is inevitable for the health care institutions to take such a matter into consideration while developing strategies and implementing health care policies, which involves people with learning and other developmental disabilities.Project Methods/MethodologyFor the resolve of this study, phenomenological research methodology is chosen, whereby observations are made on the basis of info collected from trusted government websites such as the NHS, published research reports, medical journals, books as well as magazines and newspapers.In send to sue the research objectives, an attempt was made to explore, analyze and seek information related to soft studies which aimed atAssessing the plight of people suffering from learning disabilities.The comprehension of such people towards the health care facilities made available by the government.The existence of various services and its effectiveness and addressing the key issues and challenges faced by such people.The need for accomplished carers and the knowledge which they must possess in order to be able to deal with such people, in a smash and efficient manner.The various obstacles which may be encountered while transaction with patients suffering from learning disabilities right from detective work to end-of-life care, etc among others.This research is based on t he phenomenological research methodology, which takes into consideration the perspectives of other researchers, and research reports published by government departments comprising of first hand information and accounts of people suffering from learning disabilities. jibe to Dilthey, (in Rapport, 2004)The quest to understand more and better is essentially a qualitative pursuit that requires an experience-near language. It starts with experiences we already understand and expands and deepens these understandings into broader and different contexts through dialogue with otherness. such(prenominal) understanding proceeds by a mode of analysis in which meaning arises out of relating parts to whole (Pp. 80)Literature review helps in assessing, analyzing and interpreting various studies conducted by scholars, and researchers with regard to the progeny under study and helps in justifying and substantiating the research hypothesis. Literature reviews help in summarizing the various perspec tives presented by the researchers with regard to the given topic and lend more believability to the subject being discussed. According to Burns and Grove (2005)Literature review is an organized written presentation of what has been published on a topic by scholars. The purpose of the review is to convey to the reader what is currently cognise regarding the topic of interest (Pp.93).Literature ReviewPeople with learning disabilities are very much excluded within rescript also have little assert over their own lives, and were more likely than others to have bad things hap in their lives (Joint Committee on Human Rights, 2008). People with learning disabilities, and specially older ones, are among those groups of people who are faced with various barriers, such as access to good quality health care and equality in opportunities and health care services available to them, which add to their woes by making it all the more difficult to cope with their disability (Jenkins, 2005 Frey , 2006). People with learning disabilities comprise of a highly vulnerable section of the ball club and have limited access to health care facilities / services offered to them. Hence they are often faced with obstacles and challenges while copying with grave situations such as loss and bereavement of loved ones, personal illness, death etc (Elliott, 1995). which in turn tends to aggravate their situation and increase their dependence on the society which includes their friends, family and loved ones as well as the community in general. They are known to have been ignored persistently in terms of providing services in the need of personal illness, death, and other challenging life situations, thence increasing their vulnerability all the more.One of the most common characteristics discovered in case of people with learning disabilities, on the basis of various studies, is their inability to communicate effectively. Although some of them can communicate their thoughts, feelings, fears and emotions effortless, a majority of them find it difficult to communicate accurately, in a meaningful manner. Such a drawback, often leads to further serious complications, such as detection of any major health problems, thus putting their lives at danger (Gates, 2007 Great Britain Joint Committee on Human Rights Report, 2008).According to Tuffrey-Wijne (2003), one of the most effective means of accurate medical assessment is fascinate and effortless communication and any irregularity in communicating issues related to ones health often, invariably leads to disastrous results, which affects the health of the individual in question, and leads to foolish and undesirable outcomes. The outcome of ineffective communication and inability to communicate ones health problems is even more lethal in case of people with learning disabilities. According to Tuffrey-Wijne (1997) any inefficiency on the part of the individual suffering from learning disability, to communicate their hea lth problems, may lead to a late diagnosing which further leads to an incorrect prognosis, and ultimately ends in untimely death of the individuals concerned. function of Population Censuses and Surveys (OPCS 1998) showed that 48% of people with learning disabilities have impairment in one sensory domain and 18% are doubly impaired. or so significant issues are eating problem, nutrition, sleeping, respiratory function problems, foot care, throw together conditions, pressure sores, bowel problems and gear disease (J.OHaraA.Sperlinger, 1997). Improved access to health care services for people with learning disabilities is a step forward in ensuring their well being. Good quality physiologic and mental care services can go a long way in ensuring their long term safety. Furthermore increased commitment on the part of the carers and other health care service providers is probably one of the instant(prenominal) and cheapest ways to ensure their better health. One of the most import ant and of the essence(p) elements of health care services is offering end-of-life care services to people with learning disabilities.Communication, with respect to people with learning disabilities, is not restricted to the specified transfer of thoughts to the other person/s but in fact, it includes the ability that other person, to whom the information is being communicated, to accurately interpret the thoughts being conveyed, suffice promptly on the information made available to them, and ensure follow up. Such a form of reciprocal communication is an extremely important and fundamental survival tool, for people with learning disabilities. According to Kerr et al (1996) available statistics have indicated that as many as 50% of the people suffering from learning disability suffer from some form of communication impairment, which includes difficulties in cognition, hearing, language, speech or social interaction (Ambalu, 1997). This is a matter of grave concern for the care gi vers as well as the government health care institutions which are involved in providing health care services to people with disabilities.Another equally critical aspect, which is generally observed with regard to the people with learning disabilities, is the nix science about such people among the common public, which in turn further gives rise to an equally minus reaction from people with learning disabilities which arises from the feeling that they are being negatively viewed (Gates, 2007). According to Thornton (1996), Lindop and Read (2000) and Read (2006) the major reasons behind such negative perception of people with learning disabilities is the lack of adequate knowledge as well as lack of professional experience which invariably leads to negative attitudes among people towards those with learning disabilities. According to Mencap (2004) such factors may further terminate into professional incongruity and prejudicial treatment, thereby further hampering their mental and physical well-being ultimately leading to institutional discrimination and poor health care for such people. Create sentiency and build up social relationships with people with learning disabilities, consideration unavoidably to be given to how to aver relationships, using e genuinelyday opportunities to engage in valued conversation. Often, as carers, main interaction with people is associated with personal care (Ambalu in OHara Sperlinger1997). The government colour Paper Valuing people A new strategy for Learning harm for the 21st Century (Department of Health 2001a) clearly set the agenda for us, in offering appropriate and effective support people with learning disabilities in their everyday lives.Critical CommentaryLearning Disability is a label. People with learning disability are people first.The British Institute of Learning Disabilities, 2010Thus it is compulsory that such people receive utmost care and quality health care services which, if not better, at par wit h the facilities and services enjoyed by the rest of the population, disregardless of their mental / physical health. People, regardless of their backgrounds i.e. race, ethnicity, gender, age, or socio-economic backgrounds they belong to, have an equal and just right to have access to quality health care services, and the denial of such a basic right, is the denial of human rights.It has been observed, on the basis of the above research, that people suffering from learning disabilities are often victims of negative public perception and lack of professionalism displayed by the carers, which forces this group to succumb to their illnesses, which often goes undetected. Such unvoiced deaths, are common among people with learning disability (Read, 2006) and hence requires active steps to be taken on the national level. In order to eliminate and / reduce the occurrence of such disenfranchised deaths among people with learning disabilities it is necessary and extremely important for th e general population to treat such people with dignity, and respect. They deserve an equal right to be treated as adults and equal citizens.Such a policy entails implementation of creative health care strategies specifically aimed at people with learning disability, as well as active participation and cooperation on the part of the carers, in order to ensure effective communication, which in turn, as observed from the above research, ensures better understanding of the problems faced by them, a prompt analysis and diagnosis and an effective treatment.ConclusionDignity in care is a very critical element of health care, and considering the fact that people with learning disabilities are amongst the largely socially disqualified and hence highly vulnerable, groups in the UK it requires conterminous attention at both institutional as well as national level. People suffering from learning disabilities are socially ignored, and often are subject to prejudicial treatment, partly owing to lack of awareness and more so, on account of the lack of availability of opportunities. They rarely have proper employment and have little or no find out over the carers who are appointed for looking after their well-being.Moreover their concerns are barely discussed on a wider platform. This situation is grave and calls for immediate qualifying and positive reforms. People with learning disabilities are equally respectable members of the society and they need to be treated with dignity and care which they deserve. Concerns such as unemployment, proper health care, education, housing, social security, etc should be addressed by the government in association with the local councils and ensure its proper access to the people with in dire need of such services. Proper implementation of well designed policies and measures and synchronized co-ordination of all members of the community can go a long way in securing the well being of such people.It can be difficult at times, and extremel y challenging but such positive practice by the health care service providers and carers alike can pave way for better networking, collaborative working and interdisciplinary support, thus ensuring their health and safety in the long run (BILD,2010).. It is imperative that the government and the leading health care institutions champion this cause, and instigate, lead and set ahead such good practice initiatives by providing professional and well trained carers for people with learning disabilities. Hence gaining trust and building relationship over a period of time are important consideration not only establishing and maintaining relationships, but also in thinking about remainder (I. Peate D. Fearns 2006). In conclusion, strict guidelines and policies are not enough at times, and it needs a collaborative effort on all fronts to strive to provide better care to people with learning disabilities.